E-Rare Ethics Workshop

On the 14 of January 2013 in Tel Aviv, Israel the Chief Scientist Office of the Health Ministry of Israel, a member of E-Rare Consortium organized a workshop dedicated to "Ethical aspects of exome and whole genome sequencing studies in rare diseases". The workshop gathered top-level specialists in ethics, law and genome/exome sequencing applied to rare diseases. The programme of the workshop and all videos of the lectures are now available on line.

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Joint Transnational Call 2013 Announcement

On the 7th of December 2012 E-Rare opens its 5th Joint Transnational Call for Research Projects on Rare Diseases (JTC 2013). We are proud to announce that this year six new funding agencies are joining the call. The aim of the call is to enable scientists in different countries to build an effective collaboration on a common interdisciplinary research project based on complementarities and sharing of expertise, with a clear translational research approach...

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Events

European Human Genet...
External Event - on 8 Jun 2013
This international conference (now in its 46th yea...
International Summer School "Clinical practic...
External Event - on 8 Jul 2013
12th European Symposium on Congenital Anomalies, 1...
External Event - on 14 Jun 2013
IRDIRC Conference 2013, 16-17 April 2013, Dublin,...
External Event - on 16 Apr 2013
Translating Genomics - making science work for hea...
External Event - on 4 Dec 2012

Related EU Initiatives

Orphadata
on August 31, 2012
Free Acessible Dataset Related to Rare Diseases and Orphan Drugs
IGTC
on August 31, 2012
International Gene Trap Consortium
HPO
on August 31, 2012
Human Phenotype Ontology
GEUVADIS
on August 31, 2012
Genetic European Variation in...
GEN2PHEN
on August 31, 2012
Genotype-to-Phenotype Database

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For more information ABOUT E-Rare please contact:

 

E-Rare Coordinator

Daria JULKOWSKA

Tel.: +33 1 58 14 22 84

daria.julkowska@inserm.fr

 

Fondation maladies rares

Plateforme des Maladies Rares

96, rue Didot

75014 PARIS

 

E-Rare 2012 - Created by Toussaint Biger